This site is permanenty under construction and will be updated each time more information becomes available.
It records the history of the families descending from the 18th century Fletchers of Burnley. Some of this family had the genetic make-up for an inherited condition then known as double-jointedness and this condition is still present in some of their living descendants.
The syndrome is defined by the medical profession as producing musculoskeletal symptoms occurring in otherwise healthy people. Recently it has been stated that there might be two types of hypermobility and that while the first is milder, occurring in people whose joints are just like those of everyone else but with the capacity to move more than usual, the other has features that suggest it is part of a more serious inherited connective tissue disorder known as Ehlers-Danlos Syndrome. It is this latter type of hypermobility that is present in the Fletchers.
Many family members members have displayed characteristics of hypermobility yet never had problems severe enough to lead to diagnosis. Others have had medical problems that were not known to be connected with EDS until quite recently. Finally there are those who had joint problems leading to diagnosis in childhood and early teenage years and who have eventually become quite badly disabled.So it is clear that mild effects of the condition in one family member cannot be used to predict mild effect in another
Clinicians seeing new patients often need to examine the whole family history to trace affected members who may not have been diagnosed before because of the mild degree to which they were affected or because their reported disorders may not have been known to be associated.
In this family living members have been diagnosed with the Ehlers Danlos hypermobility and this has led to retrospective diagnosis of others,some of whom are now deceased but known to have had mild hypermobility and/or other disorders known to be associated. From that point diagnosis has been made by genetics and genealogy in that Fletchers with known hypermobile descendants are considered to have had the hypermobility condition themselves. Using this strategy the EDS in this family has been provisionally traced back to John Fletcher of Ightenhill Park,Burnley,Lancashire
John was born in 1737 and married Mary Whitaker on the 30th October 1759. Until her ancestors and more of their descendants are traced it is not possible to decide whether Mary brought the EDS into the Fletcher family or if it was already there.
As far as possible their known descendants will be included in the notes on this website but to protect the privacy of living persons no individual details are included. In certain circumstances these may be made available on request. All new information on the family will be welcomed.
The Fletcher Family Tree
Discussion Mailing List and Resources for Fletchers originating in Burnley
More about Hypermobility Syndromes
Some Hypermobility Syndrome Links
The Double-Jointed Fletchers of Burnley
The Hypermobility Syndrome Association (UK)
The Ehlers-Danlos Support Group.(UK)
The Ehlers-Danlos National Foundation.(USA)
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